https://www.vakinha.com.br/vaquinha/amefelipe Felipe dos Santos needs to reach the amount of U$ 650,000 to buy an important drug in the treatment of Spinal Muscular Atrophy (SMA)) --- Felipe dos Santos was born in 1981, in Santa Maria (southern Brazil). At the age of two, physicians gave him a life expectancy of only 12 years. The verdict came along with the diagnosis of Spinal Muscular Atrophy (SMA – a genetic syndrome whose symptoms may include progressive muscle weakness, hypotonia and muscle atrophy). However, Medicine, so wise and so relentless in its predictions, did not know the strength of that child. With an unusual determination, the boy has learned almost everything he knows by himself. He began to read and write, studied Electronics and Programming. Amid successive hospitalizations to treat respiratory infections caused by SMA, Felipe learned to play the piano and read sheet music at the same year when he underwent spinal surgery to fix his scoliosis, responsible for compromising his lungs. Later, he lost part of the movement in his arms and quited playing music. Felipe has learned English once again by himself. Shortly after, he started college, which was interrupted in 2004 because of his weakened health. That same year, he totally lost the movement of his right arm. And again, alone, Felipe has learned to write with his left arm, but it was only a short time. Soon, he could no longer use paper and pen.) More on the site... https://www.vakinha.com.br/vaquinha/amefelipe Please help spread this campaign, and if possible, donate! He's a great guy!
